Patient advocacy group meeting

The 2016 International Meeting of Patient Support and Advocacy Groups will take place on Wednesday 8 June, from 10:00 till 17.30. The day will be divided into two main parts; the future for collaborative working between patients groups and whether there is any way we can work together and if a formal structure is needed. Also looking at issues which face all patients groups and if by working together we can address these. The second part of the day will be a number of sessions looking at specific areas of learning. Such as how to use social media effectively, lobbying governments, working with schools. Laura Beljars will share her remarkable ability with social media and other speakers are still to be confirmed.

Registration for the International Meeting of Patient Support and Advocacy Groups is included in the conference registration fee. Student rate applies for registration for one representative per patient group. Please register through the register now link.

* The participation in the International Meeting of Patient Support and Advocacy Groups only  is free of charge. if you want to attend this  particular meeting, please send your full name, institution name, address information, phone number and e-mail address to this e-mail:

Looking forward to seeing you in Warsaw!

Suzanne Dobson,
Tourettes Action UK

Maciej Soborczyk,
​Tourette Syndrome Association of Poland